Letters for Lorelei

It’s time for something big!!

Please read this post all the way to the end. What I will be asking of all of you is SO SIMPLE and will literally take just two minutes of your time. I have started a campaign called “Letters for Lorelei”. I have written a letter that all of you can use to send to Pennsylvania Governor Corbett.  I am asking people from any state and any country to participate. Below is a copy of the letter. Simply copy and paste it into an email, type your name and send it to me. Easy right?! If you choose to do so, you can add your full address or just your county and state but this is not necessary if you don’t want to add it. You are also welcome to add you own comments at the bottom but I ask that you leave the current text as is.

Please take just a few minutes of your time to make a difference, not just in Lorelei’s life, but in your own or a loved one’s life. When you are done just send it to me at Lorlan107@gmail.com. Yes….I am begging 🙂 Just copy the letter below and paste it into an email. Thank you all so much. Looking forward to getting lots and LOTS of emails!!

 

Dear Governor Corbett,

 

I am writing to you today to ask you to please pass Senate Bill 1182.  A very special six-year-old Pennsylvania girl, Lorelei Ulrich, is suffering from epilepsy that is not responding to medication.  Lorelei started having seizures at 22 months old.  Now, at six years old, she has tried and failed over a dozen pharmaceutical medications in various combinations and the ketogenic diet.  Today, Lorelei is having several hundred seizures every day.

One treatment that Lorelei has not yet been able to trial is a very specific type of medical cannabis containing a high concentration of a cannabinoid called cannabidiol (CBD).  Strains of cannabis that contain a high concentration of CBD have been proven to be an effective treatment for medication resistant epilepsy.  In fact, in states with progressive cannabis programs like Colorado and California, children with refractory epilepsy, like Lorelei, when provided with a consistent dose of high concentration CBD cannabis, are often able to stop taking their pharmaceutical anti-epileptic drugs completely. Particularly noteworthy about CBD is that, unlike the cannabinoid THC, it is non psycho active, so there is no “high.”  The plant is made into an edible form, like a tincture, which is administered to the patient orally via syringe, or added to food, just like a pharmaceutical medication.

Lorelei is in dire need of an effective treatment for her seizures.  Each day she is slipping further and further away from her family.  Cannabis could be the miracle they have been searching for.  To help Lorelei and thousands of other Pennsylvania residents gain safe access to the medicine they so desperately need, please support Senate Bill 1182 and the legalization of medical cannabis which is strongly supported by the people of Pennsylvania who elected you as Governor. Lorelei’s life depends on you.

 

Sincerely,

6 thoughts on “Letters for Lorelei

  1. Thank you for the work you are doing. I am a Pennsylvania and I suffer from uncontrolled seizures. I would love to have more options for my treatment. But more than that, I want treatment for you daughter. Children shouldn’t have to suffer when there are treatments that can help. What else can I do to help? I sent you an email with the letter.

    If you are interested, I write a lot about my own seizures on my blog @ ktslagle.wordpress.com

    • So sorry to hear that you also have uncontrolled seizures. The best thing you can do is to contact your senator and representative and ask them to support Senate Bill 1182. Tell everyone you know in Pa to do the same. We needs lots of support in Harrisburg tomorrow for the hearing and rally if you or anyone you know can make it. Thank you so much for taking part in Letters for Lorelei. Praying you find relief soon ❤

      • Thank you. I will be contacting many of my representatives soon, I didn’t realize there were two bills already in the House and Senate. My local rep does support it and is one of the committees. Thank you Sean Wiley. There is a hearing tomorrow?? I can’t make it to Harrisburg (no driving due to seizures) but I would love to submit something to be read? Can I do that?

      • Unfortunately it’s a little too late to submit anything in writing at this point. It would not have been read after hearing any way but rather submitted as testimony. sorry that you will not be able to make it tomorrow. More people is always better at these kind of things. I will definitely keep everything updated on my Legalize for Lorelei Facebook page. I don’t use this blog much anymore except for media and resources. I do however post daily on the Facebook page.

      • Thank you. I contacted my reps. Good luck tomorrow, I will be there in spirit and watching online. Will your daughter be at the hearing? I will be following you on Facebook.

      • Thank you for your support! Yes, Lorelai’s coming with me. I will not be speaking at the hearing, I let another mother have my spot as her child has a much more compelling story then hours. I felt it was only right to give her my spot. I will however be speaking at the rally. There will definitely be press coverage and you may be able to find something on the news tomorrow evening.

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